AARCC members — join us via Zoom for our upcoming Research Network Meeting!

Click here to request the Zoom meeting link or if you have any questions.

Room Location: 101

About the Event: Updates on ongoing projects and seven (7) new Young Investigator Projects.

*** Be on the lookout (email & spam mailbox) for invitations to speak at GUCH WCPCCS Pre-Academy & the WCPCCS main sessions in the coming days - weeks! ***

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Cost: AARCC Member - Complimentary

Agenda Coming Soon!

More Information Coming Soon….

Virtual Network Active Studies Update Meeting

May 10, 2021 at 7:00 - 8:00pm

All meeting time Eastern.

Additional resources and tools to help us spread the message about this important initiative. Here are some helpful resources you’re welcome to utilize.

• Congenital Heart Initiative website [chi.eurekaplatform.org] -- registry website for patients

• Congenital Heart Initiative promo video [youtube.com] -- 2 minute introduction video that you can use in social media posts

• Individual patient promotion toolkit [curastrategies.box.com] -- good for patients/patient organizations who would like to promote the registry

• Organizational promotion toolkit [curastrategies.box.com] -- has template emails that you can modify to send out to patients

• Social Media graphics [curastrategies.box.com]

• Patient focused one-pager [curastrategies.box.com] -- one page fliers that you can hand out in clinic. Just need to be printed out.

• Provider focused one-pager [curastrategies.box.com]

Webinar Registration

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TopicImproving the Landscape of Care: The Congenital Heart Initiative

Description We’re excited to bring you an exclusive presentation with the latest insights into the CHD community from Dr. Anitha John, Scott Leezer and our own Mark Roeder, the driving team behind the Congenital Heart Initiative. You and your experience can hold the key to unlocking a better future for ACHD patients. Join us to hear how!

If you are a patient living with ACHD, consider enrolling in the registry. Learn more and register here: https://chi.eurekaplatform.org

https://us02web.zoom.us/webinar/register/WN_RsiX-91KQ2KKii1R9cLYkQ

February 11, 2021

“Rhythm & Blues: Learning about Congenital Heart Disease” Table Talk Series from the Association of Black Cardiologists

Time: 4 PM PACIFIC

Location: Live Online!

The ABC Cardiovascular Disease in Women and Children Committee kicks off its Table Talk Series with a first of its kind program on pediatric congenital heart disease (CHD). Join the conversation to learn about CHD and gain insight into the multiple levels of care required for a CHD patient. Engage in a discussion about the health disparities with CHD in underrepresented communities and how to close the gap.

Register to join event today!

www.aarcc.net      AARCC.consortium@gmail.com

February 1, 2021

Membership Meeting AGENDA

7:00 pm Eastern via ZOOM

https://us02web.zoom.us/j/86860489194?pwd=aEVhbEh2Y3VMZTBxS2xyc0YySEtJZz09

Meeting ID: 868 6048 9194   ***See your calendar for Passcode****

7:00 PM         Call To Order and Welcome!                                                           President Dr. Jasmine Grewal

7:05 PM         Expectations & Overview of New Management                          Exec. Director Lianna Collinge

7:08 PM         Membership: Dues Update                                       Treasurer Dr. Alexander (Sasha) Opotowsky

7:12 PM         Review of AARCC Survey Results and Next Steps                               President Dr. Jasmine Grewal

7:30 PM         Review of Active Studies :

                                    Dr. Yuli Kim – Predictors of Hepatocellular Carcinoma 

7:33 PM                     Dr. Sal Ginde – Impact of Long Term Health Outcomes in Women

                                                with a Fontan Circulation 

 7:36 PM                    Dr. Jeremy Nicolarsen – Survey of Practice Patterns for Ordering and

                                                Interpreting Diagnostic EP Studies & Sudden Cardiac Death Screening in

                                                Adolescent and Adult patient with TOF 

 7:39 PM                    Drs. Ali Zaidi, Scott Cohen – MINDS ACHD study 

 7:42 PM                    Dr. Matt Lewis – Foster study 

7:45 PM                     Dr. Craig Broberg – Systemic RV Registry 

7:48 PM                     Dr. Anitha John - Present status of CHI

7:51 PM                     Q&A, Wrap up

8:00 PM                      Adjournment