AARCC Publications

2021

Cardiovascular outcomes of pregnancy in Turner syndrome

Grewal J, Valente AM, Egbe AC, Wu FM, Krieger EV, Sybert VP, van Hagen IM, Beauchesne LM, Rodriguez FH, Broberg CS, John A, Bradley EA, Roos-Hesselink JW; AARCC Investigators.Heart. 2021 Jan;107(1):61-66.

Recurrent sustained atrial arrhythmias and thromboembolism in Fontan patients with total cavopulmonary connection

Egbe AC, Miranda WR, Devara J, Shaik L, Iftikhar M, Goda Sakr A, John A, Cedars A, Rodriguez F 3rd, Moore JP, Russell M, Grewal J, Ginde S, Lubert AM, Connolly HM; Alliance for Adult Research in Congenital Cardiology (AARCC) investigators. Int J Cardiol Heart Vasc. 2021 Mar 15;33:100754.

COVID-19 in Adults With Congenital Heart Disease

Broberg CS, Kovacs AH, Sadeghi S, Rosenbaum MS, Lewis MJ, Carazo MR, Rodriguez FH 3rd, Halpern DG, Feinberg J, Galilea FA, Baraona F, Cedars AM, Ko JM, Porayette P, Maldonado J, Sarubbi B, Fusco F, Frogoudaki AA, Nir A, Chaudhry A, John AS, Karbassi A, Hoskoppal AK, Frischhertz BP, Hendrickson B, Bouma BJ, Rodriguez-Monserrate CP, Broda CR, Tobler D, Gregg D, Martinez-Quintana E, Yeung E, Krieger EV, Ruperti-Repilado FJ, Giannakoulas G, Lui GK, Ephrem G, Singh HS, Almeneisi HM, Bartlett HL, Lindsay I, Grewal J, Nicolarsen J, Araujo JJ, Cramer JW, Bouchardy J, Al Najashi K, Ryan K, Alshawabkeh L, Andrade L, Ladouceur M, Schwerzmann M, Greutmann M, Meras P, Ferrero P, Dehghani P, Tung PP, Garcia-Orta R, Tompkins RO, Gendi SM, Cohen S, Klewer S, Hascoet S, Mohammadzadeh S, Upadhyay S, Fisher SD, Cook S, Cotts TB, Aboulhosn JA.J Am Coll Cardiol. 2021 Apr 6;77(13):1644-1655.

2019

Thromboembolic Risk After Atriopulmonary, Lateral Tunnel, and Extracardiac Conduit Fontan Surgery

Deshaies C, Hamilton RM, Shohoudi A, Trottier H, Poirier N, Aboulhosn J, Broberg CS, Cohen S, Cook S, Dore A, Fernandes SM, Fournier A, Kay J, Mondésert B, Mongeon FP, Opotowsky AR, Proietti A, Ting J, Zaidi A, Khairy P; Alliance for Adult Research in Congenital Cardiology (AARCC). J Am Coll Cardiol. 2019 Aug 27;74(8):1071-1081.

Thromboembolic Risk After Atriopulmonary, Lateral Tunnel, and Extracardiac Conduit Fontan Surgery

"Treat-to-close": Non-repairable ASD-PAH in the adult: Results from the North American ASD-PAH (NAAP) Multicenter Registry

Bradley EA, Ammash N, Martinez SC, Chin K, Hebson C, Singh HS, Aboulhosn J, Grewal J, Billadello J, Chakinala MM, Daniels CJ, Zaidi AN. Int J Cardiol. 2019 Sep 15;291:127-133.

2017

Increasing Prevalence of Atrial Fibrillation and Permanent Atrial Arrhythmias in Congenital Heart

Labombarda F, Hamilton R, Shohoudi A, Aboulhosn J, Broberg CS, Chaix MA, Cohen S, Cook S, Dore A, Fernandes SM, Fournier A, Kay J, Macle L, Mondésert B, Mongeon FP, Opotowsky AR, Proietti A, Rivard L, Ting J, Thibault B, Zaidi A, Khairy P; AARCC. J Am Coll Cardiol. 2017 Aug 15;70(7):857-865.

Liver health in adults with Fontan circulation: A multicenter cross-sectional study

Wu FM, Kogon B, Earing MG, Aboulhosn JA, Broberg CS, John AS, Harmon A, Sainani NI, Hill AJ, Odze RD, Johncilla ME, Ukomadu C, Gauvreau K, Valente AM, Landzberg MJ; Alliance for Adult Research in Congenital Cardiology (AARCC) Investigators. J Thorac Cardiovasc Surg. 2017 Mar;153(3):656-664.

Predictive value of biomarkers of hepatic fibrosis in adult Fontan patients

Wu FM, Earing MG, Aboulhosn JA, Johncilla ME, Singh MN, Odze RD, Ukomadu C, Gauvreau K, Landzberg MJ, Valente AM; Alliance for Adult Research in Congenital Cardiology (AARCC) Investigators. J Heart Lung Transplant. 2017 Feb;36(2):211-219.

2016

Adult Congenital Heart Disease Patients Experience Similar Symptoms of Disease Activity

Cedars AM, Stefanescu Schmidt A, Broberg C, Zaidi A, Opotowsky A, Grewal J, Kay J, Bhatt AB, Novak E, Spertus J; Alliance for Adult Research in Congenital Cardiology (AARCC). Circ Cardiovasc Qual Outcomes. 2016 Mar;9(2):161-70.

Clinical Experience With the Subcutaneous Implantable Cardioverter-Defibrillator in Adults With Congenital Heart Disease

Moore JP, Mondésert B, Lloyd MS, Cook SC, Zaidi AN, Pass RH, John AS, Fish FA, Shannon KM, Aboulhosn JA, Khairy P; Alliance for Adult Research in Congenital Cardiology (AARCC). Circ Arrhythm Electrophysiol. 2016 Sep;9(9).

Thromboprophylaxis for atrial arrhythmias in congenital heart disease: A multicenter study

Khairy P, Aboulhosn J, Broberg CS, Cohen S, Cook S, Dore A, Fernandes SM, Fournier A, Kay J, Levesque S, Macle L, Marcotte F, Mondésert B, Mongeon FP, Opotowsky AR, Proietti A, Rivard L, Ting J, Thibault B, Zaidi A, Hamilton R; Anticoagulation Therapy in Congenital Heart Disease (TACTIC) investigators and the Alliance for Adult Research in Congenital Cardiology (AARCC). Int J Cardiol. 2016 Aug 13;223:729-735.

2015

Pheochromocytoma and paraganglioma in cyanotic congenital heart disease

Opotowsky AR, Moko L, Ginns J, Rosenbaum M, Greutmann M, Aboulhosn J, Hageman A, Kim Y, Deng LX, Grewal J, Zaidi AN, Almansoori G, Oechslin E, Earing M, Landzberg MJ, Singh MN, Wu F, Vaidya A; Alliance for Adult Research in Congenital Cardiology (AARCC). J Clin Endocrinol Metab. 2015 Jan 12.

2014

Clinical research priorities in adult congenital heart disease

Cotts T, Khairy P, Opotowsky AR, John AS, Valente AM, Zaidi AN, Cook SC, Aboulhosn J, Ting JG, Gurvitz M, Landzberg MJ, Verstappen A, Kay J, Earing M, Franklin W, Kogon B, Broberg CS; Alliance for Adult Research in Congenital Cardiology (AARCC). Int J Cardiol. 2014 Feb 15;171(3):351-60.

2013

Improving heart disease knowledge and research participation in adults with congenital heart disease (the Health, Education and Access Research Trial: HEART-ACHD)

Valente AM, Landzberg MJ, Gianola A, Harmon AJ, Cook S, Ting JG, Stout K, Kuehl K, Khairy P, Kay JD, Earing M, Houser L, Broberg C, Milliren C, Opotowsky AR, Webb G, Verstappen A, Gurvitz M; Alliance for Adult Research in Congenital Cardiology (AARCC) Investigators; Adult Congenital Heart Association (ACHA). Int J Cardiol. 2013 Oct 9;168(4):3236-40.

Prevalence and Predictors of Gaps in Care Among Adult Congenital Heart Disease Patients: HEART-ACHD (The Health, Education, and Access Research Trial)

Gurvitz M, Valente AM, Broberg C, Cook S, Stout K, Kay J, Ting J, Kuehl K, Earing M, Webb G, Houser L, Opotowsky A, Harmon A, Graham D, Khairy P, Gianola A, Verstappen A, Landzberg M; Alliance for Adult Research in Congenital Cardiology (AARCC) and Adult Congenital Heart Association. J Am Coll Cardiol. 2013 May 28;61(21):2180-4.

Shock-related anxiety and sexual function in adults with congenital heart disease and implantable cardioverter-defibrillators

Cook SC, Marie Valente A, Maul TM, Dew MA, Hickey J, Jennifer Burger P, Harmon A, Clair M, Webster G, Cecchin F, Khairy P; Alliance for Adult Research in Congenital Cardiology. Heart Rhythm. 2013 Jun;10(6):805-10.

Left and Right Ventricular Diastolic Function in Adults With Surgically Repaired Tetralogy of Fallot: A Multi-Institutional Study

Aboulhosn JA, Lluri G, Gurvitz MZ, Khairy P, Mongeon FP, Kay J, Valente AM, Earing MG, Opotowsky AR, Lui G, Gersony DR, Cook S, Child J, Ting J, Webb G, Landzberg M, Broberg CS; Alliance for Adult Research in Congenital Cardiology (AARCC). Can J Cardiol. 2013 Jan 28.

Aortic root dilatation in adults with surgically repaired tetralogy of fallot: a multicenter cross-sectional study

Mongeon FP, Gurvitz MZ, Broberg CS, Aboulhosn J, Opotowsky AR, Kay JD, Valente AM, Earing MG, Lui GK, Fernandes SM, Gersony DR, Cook SC, Ting JG, Nickolaus MJ, Landzberg MJ, Khairy P; Alliance for Adult Research in Congenital Cardiology (AARCC). Circulation. 2013 Jan 15;127(2):172-9.

2011

Prevalence of left ventricular systolic dysfunction in adults with repaired tetralogy of fallot

Broberg CS, Aboulhosn J, Mongeon FP, Kay J, Valente AM, Khairy P, Earing MG, Opotowsky AR, Lui G, Gersony DR, Cook S, Ting JG, Webb G, Gurvitz MZ; Alliance for Adult Research in Congenital Cardiology (AARCC). Am J Cardiol. 2011 Apr 15;107(8):1215-20.

Heart rate response during exercise and pregnancy outcome in women with congenital heart disease

Lui GK, Silversides CK, Khairy P, Fernandes SM, Valente AM, Nickolaus MJ, Earing MG, Aboulhosn JA, Rosenbaum MS, Cook S, Kay JD, Jin Z, Gersony DR; Alliance for Adult Research in Congenital Cardiology (AARCC). Circulation. 2011 Jan 25;123(3):242-8.

2010

Arrhythmia burden in adults with surgically repaired tetralogy of Fallot: a multi-institutional study

Khairy P, Aboulhosn J, Gurvitz MZ, Opotowsky AR, Mongeon FP, Kay J, Valente AM, Earing MG, Lui G, Gersony DR, Cook S, Ting JG, Nickolaus MJ, Webb G, Landzberg MJ, Broberg CS; Alliance for Adult Research in Congenital Cardiology (AARCC). Circulation. 2010 Aug 31;122(9):868-75.

The CALF (Congenital Heart Disease in Adults Lower Extremity Systemic Venous Health in Fontan Patients) study

Valente AM, Bhatt AB, Cook S, Earing MG, Gersony DR, Aboulhosn J, Opotowsky AR, Lui G, Gurvitz M, Graham D, Fernandes SM, Khairy P, Webb G, Gerhard-Herman M, Landzberg MJ; AARCC (Alliance for Adult Research in Congenital Cardiology) Investigators. J Am Coll Cardiol. 2010 Jul 6;56(2):144-50.

2008

Multi-center research in adult congenital heart disease

Khairy P, Hosn JA, Broberg C, Cook S, Earing M, Gersony D, Kay J, Landzberg MJ, Nickolaus MJ, Opotowsky S, Valente AM, Warnes C, Webb G, Gurvitz MZ; Alliance for Adult Research in Congenital Cardiology (AARCC). Int J Cardiol. 2008 Sep 26;129(2):155-9.